Main Purpose & Scope
The main purpose of the work “Genetic Testing, Insurance Discrimination, and Medical Research” is to consider the shortcomings of the existing system in the United States related to genetic testing, the availability of insurance discrimination and ethical and legitimate parties of medical research, and the treatment of respondents’ data. The scope of the cited work includes medical research over the past five years, both in the USA and in various European countries.
Research Conducted
The research consisted of reviewing lawsuits related to the negative experiences of patients who participated in medical research, conducted genetic testing, or faced insurance discrimination.
Value & Significance
The value and significance of the work as a contribution to the family nurse practice is related to the fact that genetic testing is a procedure that is performed with the involvement of family members. At the same time, the issues of confidentiality and protection of patient data raised in the cited papers are very important for the nurse.
Possible Shortcomings & Bias
Possible shortcomings or biases include the fact that only one author of the work is not a resident of the USA but of another state. Since the other three authors permanently reside in the United States, they may not be fully aware of the situation with medical research in other countries and may be biased against medical practices in their own country.
Conclusions & Observations
Conclusions and observations reached by the authors consist in the need to introduce in the USA some European technologies related to the protection of information about medical research participants to combat leaks of personal data.
Summary
This research lends evidence to support the potential problem identified specific to my role specialization as I, as a family nurse practitioner, constantly have access to confidential data of my patients requiring special protection, and it is important for me to know how to prevent their leakage.
References
Bélisle-Pipon, J. C., Vayena, E., Green, R. C., & Cohen, G. (2019). Genetic Testing, Insurance Discrimination, and Medical Research: What the United States Can Learn From Peer Countries. Nature Medicine, 25(8), 1198–1204. Web.